News from NORD

NORD Seeks Input Regarding Patient Protections and ACA


 

As the new administration and Congress consider replacing the Affordable Care Act with a new system, NORD is seeking input from patients and health care providers for its advocacy on behalf of rare disease patients. Patients or providers who have experiences or concerns to share regarding pre-existing conditions, annual or lifetime insurance caps, high-risk pools, or other topics may share their experiences with NORD.

Recommended Reading

January 13 Is Deadline for NORD Rare Impact Award Nominations
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New Guidelines Published for Diagnosis and Management of Cystathionine Beta-Synthase Deficiency
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PSC Partners Seeking a Cure Launches Campaign to Distinguish Between PSC and PBC
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Hereditary Neuropathy Foundation Announces Newest Center of Excellence
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Nominate a Patient or Colleague for a NORD Rare Impact Award
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Join Others Around the World in Observing Rare Disease Day
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AWaRDS Study Examines Services for Adults With Rare Disorders
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NORD Report Shows Majority of States Fall Short on Reducing Burden of Living With a Rare Disease
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Spinal CSF Leak Foundation Publishes Resources for Medical Professionals and Patients
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Huntington’s Disease Society of America Publishes 2016 Research Report
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