News from NORD

NIH Workshop Focuses on Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis


 

NIH recently hosted a workshop to bring researchers together to discuss severe drug reactions such as Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis and possible genetic factors that might predispose individuals to greater risk.

Recommended Reading

Save the Date for the 2017 NORD Summit
Clinician Reviews
Film Festival Devoted to Rare Diseases Scheduled for October
Clinician Reviews
Applications Are Being Accepted for Free Family Rare Disease Summer Camp
Clinician Reviews
Largest-Ever Study of Pemphigus and Pemphigoid Launched
Clinician Reviews
Pamela Gavin of NORD to Speak at Technology and Rare Neurological Diseases Symposium
Clinician Reviews
Foundation for Prader-Willi Research Promotes Awareness of Guidelines Related to Use of Human Growth Hormone
Clinician Reviews
Cushing’s appears to begin its cardiovascular effects during childhood
Clinician Reviews
Patient Advocacy Groups Oppose AHCA
Clinician Reviews
NORD Issues RFPs for 2017 Research Grants for Study of Rare Diseases
Clinician Reviews
NORD Rare Action Network Issues Spring 2017 State Policy Legislative Tracker
Clinician Reviews