News from NORD

Organic Acidemia Association Launches Natural History Study With NORD


 

In collaboration with NORD, the Organic Acidemia Association has launched an international natural history study to support research on rare organic acid disorders, which cause multiple life-threatening conditions.

Recommended Reading

Cushing’s appears to begin its cardiovascular effects during childhood
MDedge Endocrinology
Patient Advocacy Groups Oppose AHCA
MDedge Endocrinology
NORD Issues RFPs for 2017 Research Grants for Study of Rare Diseases
MDedge Endocrinology
NORD Rare Action Network Issues Spring 2017 State Policy Legislative Tracker
MDedge Endocrinology
NIH Workshop Focuses on Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis
MDedge Endocrinology
Children’s Cardiomyopathy Foundation Announces Research Funding Availability
MDedge Endocrinology
Cutaneous Lymphoma Foundation Conference to Take Place June 24-25
MDedge Endocrinology
DUP15q Alliance to Host Scientific Symposium and Family Conference
MDedge Endocrinology
Immune Deficiency Foundation Seeks to Connect With Those Diagnosed With WHIM Syndrome
MDedge Endocrinology
Wyck Foundation and Myotonic Dystrophy Foundation Offer Training Fellowships
MDedge Endocrinology