News from NORD

Cure SMA

Publish date: May 8, 2018

 

Cure SMA is conducting a survey of pediatricians to assess baseline awareness regarding spinal muscular atrophy. Support Cure SMA and take the survey! More.

Recommended Reading

NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
MDedge Endocrinology
Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
MDedge Endocrinology
NCATS Unveils Toolkit for Patient-Focused Therapy Development
MDedge Endocrinology
NORD Updates Educational Rare Disease Reports
MDedge Endocrinology
Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Endocrinology
American Partnership for Eosinophilic Disorders (APFED)
MDedge Endocrinology
Aplastic Anemia and MDS International Foundation (AAMDSIF)
MDedge Endocrinology
Children’s Cardiomyopathy Foundation
MDedge Endocrinology
Cornelia de Lange Syndrome (CdLS) Foundation
MDedge Endocrinology
CurePSP
MDedge Endocrinology