Rare Diseases

Article

Cornelia de Lange Syndrome (CdLS) Foundation

Publish date: August 7, 2018

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Article

Children’s Cardiomyopathy Foundation

Publish date: August 7, 2018

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Article

American Partnership for Eosinophilic Disorders (APFED)

Publish date: August 7, 2018

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Article

NORD Updates Educational Rare Disease Reports

Publish date: August 7, 2018

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Article

NCATS Unveils Toolkit for Patient-Focused Therapy Development

Publish date: August 7, 2018

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Article

Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients

Publish date: August 6, 2018

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Article

NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans

Publish date: August 6, 2018

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Article

Medical Nutrition Equity Act Capitol Hill Day Planned for June 1

Publish date: August 6, 2018

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Article

More Than 100 Patient Organizations Join NORD in Supporting the RARE Act

Publish date: August 6, 2018

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Article

RFPs Available for the Study of Three Rare Diseases

Publish date: August 6, 2018

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Article

2018 Marks 35th Anniversary of NORD and the Orphan Drug Act

Publish date: August 6, 2018

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