NORD Board Chair Marshall Summar, MD, will moderate a Social Security Administration (SSA) National Disability Forum on Compassionate Allowances and Rare Diseases on Nov. 7, 2017. Speakers will discuss the challenges of living with rare diseases and will recommend specific diseases for SSA’s Compassionate Allowances list.
The Compassionate Allowances list is a list of diseases or medical conditions that almost invariably meet SSA guidelines for disability assistance. Applications from individuals with those diagnoses qualify for expedited review.
Medical professionals and patient representatives are invited to participate in this event. Registration to attend the Washington, DC forum in person or to listen to the forum via teleconference may be done online.
SSA will also be accepting questions or comments about Compassionate Allowances on Twitter during the forum. Use the hashtag #SSANDForum and/or direct comments to @SSAOutreach. Questions or comments may also be sent by email to nationaldisabilityforum@ssa.gov.
For two weeks after the event, SSA will be accepting suggestions online regarding diseases or conditions to be considered for the list. Read about the Compassionate Allowances Initiative and view the current list of conditions here.