News from NORD

Rare Disease Day Events Planned for Campuses, Hospitals, and State Legislatures

On February 28, 2018, Rare Disease Day will be observed around the world. This annual observance is intended to promote awareness of the 7,000 diseases considered rare in the US, the need for research and clinical guidelines, and the challenges and opportunities for improving the quality of life for patients. Educational events are planned at numerous hospitals, universities, schools, and community centers across the US. NORD will be hosting “State House Events” with patient advocates in more than 30 states to educate state legislators on issues related to state policy. Visit the national website hosted by NORD. Visit the international website .

Recommended Reading

Osteogenesis Imperfecta Foundation Biennial Conference
MDedge Hematology and Oncology
Join 7,000 Miles Campaign to Support Programs for Rare Disease Patients
MDedge Hematology and Oncology
January 12 Is Deadline for Rare Impact Awards Nominations
MDedge Hematology and Oncology
NORD Awards Five Research Grants
MDedge Hematology and Oncology
Visit NORD’s Website to Learn About Current or Future Research Funding Opportunities
MDedge Hematology and Oncology
NORD Launches Year-Long 35th Anniversary Observance
MDedge Hematology and Oncology
NORD Provides Update on Tax Cuts and Jobs Act
MDedge Hematology and Oncology
FDA Issues Guidance for More Efficient Approach to Drug Development for Rare Pediatric Diseases
MDedge Hematology and Oncology
NIH Undiagnosed Diseases Network to Offer Grand Rounds Webinar Series
MDedge Hematology and Oncology
NORD to Moderate Panel at NIH Rare Disease Day Event
MDedge Hematology and Oncology