News from NORD

January 13 Is Deadline for NORD Rare Impact Award Nominations


 

Each year the National Organization for Rare Disorders (NORD) hosts its Rare Impact Awards celebration in May. At this event, individuals and organizations are honored for advancing progress for patients and families affected by rare diseases. Nominees can include physicians, researchers, patients, caregivers, advocates, and others. In addition, organizations are honored for outstanding service to the rare disease community.

Honorees in recent years have included Francis S. Collins, MD, PhD, Director of the National Institutes of Health; Margaret A. Hamburg, MD, former Commissioner of the Food and Drug Administration; Stephen Cederbaum, MD, of the University of California, Los Angeles; and Arthur Caplan, PhD, of the NYU Langone Medical Center.

The 2017 Rare Impact Awards celebration will take place on May 18 in Washington, DC. Visit the NORD website for additional information and to submit nominations.

Recommended Reading

NORD Urges Congress to Pass 21st Century Cures Act
MDedge Internal Medicine
Canakinumab controls periodic fever syndromes in post-flare and maintenance dosing
MDedge Internal Medicine
Myeloablative HSCT bests IV CYC for systemic scleroderma
MDedge Internal Medicine
NORD Encourages Observing Rare Disease Day in Hospitals and Academic Centers
MDedge Internal Medicine
Running Marathons to Advance Rare Disease Awareness and Diagnosis
MDedge Internal Medicine
Major Three-Year Study of Undiagnosed Diseases Announced
MDedge Internal Medicine
The Journey to an FTD Diagnosis Webinar Now Available
MDedge Internal Medicine
Presentation Chronicles Pathway to Erdheim-Chester Diagnosis
MDedge Internal Medicine
Patients Are Being Recruited for LPL-Deficiency Study
MDedge Internal Medicine
Speaking of NEC Podcast Series Now Has Companion Brochure
MDedge Internal Medicine