On February 28th, medical professionals, patients, and advocates will observe Rare Disease Day in more than 90 nations worldwide. This awareness day was established in 2008 to promote education regarding rare diseases. As the national sponsor of Rare Disease Day in the US, NORD hosts the official website at www.rarediseaseday.us.
The theme for 2017 is Research and, in particular, the importance of research on rare diseases. This theme will be observed in all participating nations.
NORD provides tools and resources for those hosting events at academic centers and hospitals. Download this presentation for other suggestions regarding how to get involved. NORD will be co-hosting a tweetchat with ABC News and Dr. Richard Besser on Rare Disease Day. Details on this and other activities will be available on the Rare Disease Day US website.