The National Organization for Rare Disorders (NORD) has awarded seven new research grants to fund rare disease research. These grants are in response to NORD’s 2016 Requests for Proposals. The 2017 Requests for Proposals will be published soon on the NORD website , where funding opportunities from NORD member organizations also are posted.
The new grant recipients are:
For the study of Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins (ACD/MPV), with support funding raised by the David Ashwell Foundation and the Alveolar Capillary Dysplasia Association
- Przemyslaw Szafranski PhD, Baylor College of Medicine
For the study of Appendix Cancer and Pseudomyxoma Peritonei (PMP), with support funding raised by the Appendix Cancer Pseudomyxoma Peritonei Research Foundation
- Venkatesh Govindarajan PhD, Creighton University
- David L. Morris MD PhD, St. George Hospital, Australia
For the study of Autoimmune Polyglandular Syndrome Type 1 (APS Type 1), with support funding raised by the APS Type 1 Foundation
- Maureen A. Su MD, University of North Carolina at Chapel Hill
For the study of Homocystinuria due to Cystathionine Beta-Synthase Deficiency, with support funding raised from public donations
- Warren D. Kruger PhD, The Research Institute of Fox Chase Cancer Center
For the study of Malonic Aciduria, with support funding raised by the Hope Fund, Lundbeck “Raise Your Hand” campaign, and public donations
- Michael J. Wolfgang PhD, Johns Hopkins University School of Medicine
For the study of Stiff Person Syndrome, with support funding raised by the Lundbeck “Raise Your Hand” campaign and public donations
- Sarah Crisp PhD, University College, London
Grants are made possible by donations to NORD research funds and the assistance of rare disease medical experts who serve on NORD’s Medical Advisory Committee.