Feature

Patient advocacy groups take in millions from drugmakers. Is there a payback?


 


Eli Lilly said it contributes money to the American Diabetes Association because the two share a “common goal” of helping diabetes patients.

“We provide funding for a wide variety of educational programs and opportunities at ADA, and they design and implement those programs in ways that are aligned with their goals,” Eli Lilly said in a statement. “We’re proud to support the ADA on important work that helps millions of people living with diabetes.”

Most patient groups say that funders have little or no influence in shaping their programs and policies, but their agreements are private.

They weren’t always backed by Pharma

Into the ’80s and early ’90s, patient lobbying was generally limited and self-funded with only one or two affluent patients from an organization traveling to Washington on a given day, said Diana Zuckerman, PhD, president of the nonprofit National Center for Health Research.

Pages

Recommended Reading

Patients who hide. Patients who seek.
MDedge Internal Medicine
MDedge Daily News: How gastric bypass helps fight diabetes
MDedge Internal Medicine
MDedge Daily News: Does more marijuana mean fewer opioids?
MDedge Internal Medicine
Medicare Part D plans get more flexibility to make midyear changes
MDedge Internal Medicine
Lower heart disease mortality brings increased disparity
MDedge Internal Medicine
MDedge Daily News: Could gut bacteria trigger lupus?
MDedge Internal Medicine
Open enrollment 2018: Plan selections down slightly
MDedge Internal Medicine
MDedge Daily News: Antibiotic resistance leads to ‘nightmare’ bacteria
MDedge Internal Medicine
CMS finalizes measures to help combat opioid crisis
MDedge Internal Medicine
Health IT ‘under-users’ outnumber ‘super-users’
MDedge Internal Medicine