News from NORD

NORD to Moderate Panel at NIH Rare Disease Day Event


 

NORD Board Chair Marshall Summar, MD, of Children’s National Health System, will moderate a panel on the importance of collaborating with patient organizations in rare disease research at the annual National Institutes of Health (NIH) Rare Disease Day event on March 1, 2018. The event is open to the public and will be webcast. Other speakers will include NIH Director Francis Collins, MD, PhD; representatives of the Rare Disease Congressional Caucus; NIH researchers; and leaders of patient organizations. Topics will include gene therapy, gene editing, and engaging the next generation of the rare diseases community. For information or to register, visit the NIH web page .

Recommended Reading

Join 7,000 Miles Campaign to Support Programs for Rare Disease Patients
MDedge Pediatrics
January 12 Is Deadline for Rare Impact Awards Nominations
MDedge Pediatrics
NORD Awards Five Research Grants
MDedge Pediatrics
Visit NORD’s Website to Learn About Current or Future Research Funding Opportunities
MDedge Pediatrics
NORD Launches Year-Long 35th Anniversary Observance
MDedge Pediatrics
NORD Provides Update on Tax Cuts and Jobs Act
MDedge Pediatrics
FDA Issues Guidance for More Efficient Approach to Drug Development for Rare Pediatric Diseases
MDedge Pediatrics
NIH Undiagnosed Diseases Network to Offer Grand Rounds Webinar Series
MDedge Pediatrics
Cases link vitiligoid lichen sclerosus and darker skin
MDedge Pediatrics
Macrophage activation syndrome’s impact in childhood SLE felt mostly early
MDedge Pediatrics