News from NORD

Register Now for NORD’s Rare Impact Awards Celebration


 

On Thursday, May 17, 2018, NORD will honor clinicians, researchers, patient advocates, and others who have made outstanding contributions to improving the lives of people with rare diseases. This will take place at the Rare Impact Awards event, which takes place each year at this time in Washington, DC. This year, the venue will be the Andrew W. Mellon Auditorium. Individuals being honored include Robert Campbell, MD, of Children’s Hospital of Philadelphia, who is receiving a Lifetime Achievement Award; Richard Pazdur, MD, of the FDA, who is receiving the Public Health Leadership Award; and Elisabeth Dykens, PhD, of Vanderbilt University, who is being honored for her research related to rare genetic syndromes. Read about all the honorees .

The Rare Impact Awards Celebration is open to the public. Registration is open now on the NORD website.

Recommended Reading

‘Right to try’ bill passes House
MDedge Pediatrics
Chikungunya infection in children masquerades as SJS-TEN
MDedge Pediatrics
Longer poly-JIA inactivity not necessarily better before stopping anti-TNF therapy
MDedge Pediatrics
FDA approves burosumab to treat X-linked hypophosphatemia
MDedge Pediatrics
MDedge Daily News: Which nonopioids are ripe for abuse?
MDedge Pediatrics
Intraventricular enzyme replacement slows CLN2 disease progression
MDedge Pediatrics
Colchicine looks promising for treating prurigo pigmentosa in case report
MDedge Pediatrics
Intrauterine therapy showed promise in XLHED
MDedge Pediatrics
Low incidence of HS in children does not diminish importance of early diagnosis
MDedge Pediatrics
Collagen remodeling observed after laser treatment in EB patient
MDedge Pediatrics