News from NORD

Aplastic Anemia and MDS International Foundation (AAMDSIF)


 

AAMDSIF will be hosting seven “Living with Aplastic Anemia, MDS, PNH” patient and family conferences in cities around the country this year. Each free event offers opportunities to learn from leading medical experts and to connect with other patients and caregivers. More.

Recommended Reading

2018 Marks 35th Anniversary of NORD and the Orphan Drug Act
MDedge Pediatrics
RFPs Available for the Study of Three Rare Diseases
MDedge Pediatrics
More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Pediatrics
Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
MDedge Pediatrics
NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
MDedge Pediatrics
Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
MDedge Pediatrics
NCATS Unveils Toolkit for Patient-Focused Therapy Development
MDedge Pediatrics
NORD Updates Educational Rare Disease Reports
MDedge Pediatrics
Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Pediatrics
American Partnership for Eosinophilic Disorders (APFED)
MDedge Pediatrics