News from NORD

Children’s Cardiomyopathy Foundation


 

The Children’s Cardiomyopathy Foundation offers a research grant program for studies focused on all forms of cardiomyopathy in children. Letters of intent are due June 13, 2018. More.

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RFPs Available for the Study of Three Rare Diseases
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More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
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Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
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NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
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Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
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NCATS Unveils Toolkit for Patient-Focused Therapy Development
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NORD Updates Educational Rare Disease Reports
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Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
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American Partnership for Eosinophilic Disorders (APFED)
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Aplastic Anemia and MDS International Foundation (AAMDSIF)
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