Largest-Ever Study of Pemphigus and Pemphigoid Launched

A natural history registry that will provide a complete picture of each patient’s experience with pemphigus and pemphigoid has been launched by the International Pemphigus and Pemphigoid Foundation with NORD. This study will be open to patient worldwide to advance understanding and treatments for these rare conditions. The registry will be maintained on a platform developed by NORD in line with its mission to seek treatments or cures for all rare diseases. The project is supported by a cooperative agreement between NORD and the US Food and Drug Administration (FDA).