News from NORD

Nominate a Colleague or Patient for a NORD Rare Impact Award


 

Nominations are now open for the 2018 NORD Rare Impact Awards. These awards honor individuals who have made a positive impact on the rare disease community through research, patient care, advocacy, or other areas of involvement.

Awards are presented in May each year at NORD’s annual Rare Impact Celebration. Nominations may be submitted online. The deadline is January 12, 2018.

In recognition of the 35th anniversaries of NORD and the Orphan Drug Act in 2018, the awards will be presented in four categories representing the four pillars of NORD’s mission: Advocacy, Education, Research, and Patient Assistance.

Honorees from previous years have included members of Congress, staff and senior officials from NIH and FDA, medical researchers and clinicians, patient organization leaders, and individual patients and caregivers. The awards honor those who have helped to improve the lives of those affected by rare diseases.

Recommended Reading

CurePSP International Research Symposium to Take Place in San Francisco
MDedge Dermatology
Foundation Fighting Blindness Opens USH2A Natural History Study
MDedge Dermatology
PSC Partners Seeking a Cure Surpasses 1,000 Patients in International Registry … and Makes an Unexpected Finding Regarding Misdiagnosis
MDedge Dermatology
TESS Research Foundation Announces Grant Recipients
MDedge Dermatology
Vestibular Disorders Association Celebrates Balance Awareness Week
MDedge Dermatology
Concurrent Sturge-Weber Syndrome, Facial Infantile Hemangioma, and Cutis Marmorata Telangiectatica Congenita
MDedge Dermatology
Irregular Erythematous Patch on the Face of an Infant
MDedge Dermatology
Abatacept shows potential in refractory myositis
MDedge Dermatology
Make The Diagnosis - November 2017
MDedge Dermatology
Unsuspected Lymphomatoid Granulomatosis in a Patient With Antisynthetase Syndrome
MDedge Dermatology