News from NORD

Cornelia de Lange Syndrome (CdLS) Foundation

Publish date: May 8, 2018

 

Register now for the 8th Biennial CdLS Scientific and Educational Symposium to be held in Minneapolis on June 27-28, 2018. The program will feature talks by leading researchers. To submit an abstract, contact Amy Kimball at kimballcdls@gmail.com. More.

Recommended Reading

More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Dermatology
Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
MDedge Dermatology
NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
MDedge Dermatology
Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
MDedge Dermatology
NCATS Unveils Toolkit for Patient-Focused Therapy Development
MDedge Dermatology
NORD Updates Educational Rare Disease Reports
MDedge Dermatology
Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Dermatology
American Partnership for Eosinophilic Disorders (APFED)
MDedge Dermatology
Aplastic Anemia and MDS International Foundation (AAMDSIF)
MDedge Dermatology
Children’s Cardiomyopathy Foundation
MDedge Dermatology