News from NORD

Dup 15q Alliance


 

Join the Dup 15q Alliance and the Angelman Syndrome Research Foundation August 6-7, 2018, for world-class scientific, translational, and clinical presentations. This symposium allows for the sharing of unpublished work, which leads to conceptual discussions and helps to accelerate therapeutic opportunities for both disorders. More.

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RFPs Available for the Study of Three Rare Diseases
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More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
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Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
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NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
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Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
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NCATS Unveils Toolkit for Patient-Focused Therapy Development
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NORD Updates Educational Rare Disease Reports
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American Partnership for Eosinophilic Disorders (APFED)
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Children’s Cardiomyopathy Foundation
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Cornelia de Lange Syndrome (CdLS) Foundation
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