News from NORD

NORD Welcomes All Things Kabuki as New Member


 

All Things Kabuki , an organization providing awareness, education, and support on behalf of those affected by Kabuki syndrome, is NORD’s newest member organization. Read NORD’s Rare Disease Database report on Kabuki syndrome.

Recommended Reading

Studies support early use of genetic tests in early childhood disorders
MDedge Family Medicine
Precise cause of pityriasis rosea remains elusive
MDedge Family Medicine
Care of infants with ichthyosis requires ‘all hands on deck’
MDedge Family Medicine
Screening MRI misses Sturge-Weber in babies with port-wine stain
MDedge Family Medicine
Preview Agenda for NORD’s 2017 Rare Diseases and Orphan Products
MDedge Family Medicine
FDA Commissioner to Present Keynote Address at NORD Summit
MDedge Family Medicine
Examining the Role of Caregivers at NINR Caregiving Summit
MDedge Family Medicine
FDA Launches Expanded Access Navigator
MDedge Family Medicine
Columbia Neurosurgery Article Highlights Medical Expert’s Support for NORD Patient Information
MDedge Family Medicine
AA MDS Offers Webinar Series
MDedge Family Medicine