In a letter to the Senate and House leadership , NORD President and CEO Peter L. Saltonstall has outlined short-term fixes to stabilize the current health care markets and long-term reforms to improve health coverage for patients in the future. Mr. Saltonstall’s letter was written on behalf of the 30 million Americans who have rare diseases and those seeking to improve their lives.
On Feb. 28, 2017, NORD and several advocacy partners submitted to Congressional leadership a letter with “ Principles for Health Coverage Reform .” The principles outline various provisions that NORD and its advocacy partners believe are necessary in any health care reform plan to assure adequate coverage for Americans with rare diseases.
NORD’s more recent letter, sent on Aug. 16, outlines specific short-term reforms to provide needed stability and viability to the current insurance marketplaces established by the Affordable Care Act as well as long-term proposals to improve health care in future health coverage reform legislation.