News from NORD

Guthy-Jackson Charitable Foundation Produces New NMO Podcast


 

A new podcast series, NMO and the Power of Rare, is now available from the Guthy-Jackson Charitable Foundation. NMO or neuromyelitis optica affects the optic nerves, spinal cord, and brainstem. It can cause blindness and/or paralysis. It is sometimes misdiagnosed as MS.

Episode 1 of the series is titled The NMO Revolution: The Top 5 NMO Breakthroughs in the Past 5 Years. Nancy Sicotte, MD, Director of the MS Program at Cedars-Sinai Medical Center, is interviewed for this episode.

Recommended Reading

Fenfluramine trials in Dravet syndrome yield highly positive results
MDedge Family Medicine
NORD Publishes Three New Free Rare Disease Guides for Physicians
MDedge Family Medicine
Report on Li-Fraumeni Syndrome Now Available From NORD
MDedge Family Medicine
NORD Leads Campaign to Save Orphan Drug Tax Credit
MDedge Family Medicine
Webinar Recording on Open Enrollment Available
MDedge Family Medicine
Nominate a Colleague or Patient for a NORD Rare Impact Award
MDedge Family Medicine
NORD Reopens Call for Abstracts for Research Grants
MDedge Family Medicine
Poster Abstracts Due January 31 for European Conference on Rare Diseases and Orphan Products
MDedge Family Medicine
Beta Version of ClinicalTrials.gov Website Available for Public Testing
MDedge Family Medicine
NORD Welcomes Five New Member Organizations
MDedge Family Medicine