News from NORD

Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients


 

Braving rain, wind, and frigid conditions, the Running for Rare team of marathon runners participated in the Boston Marathon on April 16, 2018, to raise funds for NORD’s assistance program to help undiagnosed patients. For the past several years, the runners have supported NORD by participating in the Boston Marathon as well as several other full- and half-marathons. Visit the runners’ web page.

Recommended Reading

Intrauterine therapy showed promise in XLHED
MDedge Family Medicine
Low incidence of HS in children does not diminish importance of early diagnosis
MDedge Family Medicine
VIDEO: Few transgender patients desire care in a transgender-only clinic
MDedge Family Medicine
Collagen remodeling observed after laser treatment in EB patient
MDedge Family Medicine
Register Now for NORD’s Rare Impact Awards Celebration
MDedge Family Medicine
2018 Marks 35th Anniversary of NORD and the Orphan Drug Act
MDedge Family Medicine
RFPs Available for the Study of Three Rare Diseases
MDedge Family Medicine
More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Family Medicine
Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
MDedge Family Medicine
NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
MDedge Family Medicine