Morsani College of Medicine (Ms. Jones, Ms. Rivera, and Drs. Bindas and Woodward) and College of Behavioral and Community Sciences (Dr. Perkins), University of South Florida, Tampa kjones15@usf.edu
The authors reported no potential conflict of interest relevant to this article.
*Kristina Jones and Cianna Rivera contributed equally as first authors of this work.
The complexity of pain assessment in patients with Down syndrome may increase the difficulty of accurately diagnosing an injury, leading to underdiagnosis or overdiagnosis. To increase accuracy of pain assessment in this setting, we recommend using the Wong-Baker FACES Pain Rating Scale or a numeric pain rating scale in verbal patients.15 In nonverbal patients, facial expressions are reliable indicators of pain.
Which exercise?Healthy patients with Down syndrome can participate in any sport. Aerobic exercise can help lower body fat, reduce oxidative stress, and improve blood flow.6 Muscle-strengthening exercises can lead to improved daily functioning and balance. Strength training and aerobic exercise benefit aging patients with Down syndrome who are struggling with obesity. Such exercise also helps increase bone mineral density and improve cardiovascular fitness, especially when initiated at a young age. Consistent exercise promotes positive health outcomes throughout the lifespan.16
Exercise recommendations for patients with cerebral palsy
Cerebral palsy, the most common motor disability in children, is associated with intellectual disability, seizures, respiratory insufficiency, scoliosis, osteoporosis, mood disorders, dysphagia, and speech and hearing impairment.17 The increasing survival of premature babies born with cerebral palsy and the growing prevalence of adults with the condition point to the importance of expanding one’s knowledge of how best to care for this population.18
Pre-participation exam.In addition to a complete sport physical exam, it’s important to further evaluate patients with cerebral palsy for epilepsy, joint contractures, muscle weakness, spinal deformities, and respiratory insufficiency. The Gross Motor Function Classification system, commonly used for patients with cerebral palsy, scores functional ability in 5 levels.18 Patients at Level I are the most mobile; patients at Level V need wheelchair transport in all settings.
Consider sports and exercise a vital therapeutic modality— something beyond a form of recreation.
Further evaluation of spinal deformities can be initiated with x-ray screening. Consider ordering dual x-ray absorptiometry scans to evaluate bone mass.17