Rare Diseases
Article
Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
Article
NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
Article
Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
Article
More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
Article
RFPs Available for the Study of Three Rare Diseases
Article
2018 Marks 35th Anniversary of NORD and the Orphan Drug Act
Article
Register Now for NORD’s Rare Impact Awards Celebration
Conference Coverage
Collagen remodeling observed after laser treatment in EB patient
DALLAS – The investigators hypothesized that fractional ablative laser therapy and topical PLLA might help a patient with recessive dystrophic EB...
From the Journals
Low incidence of HS in children does not diminish importance of early diagnosis
Prevalence is highest in African American teen girls.
From the Journals
Intrauterine therapy showed promise in XLHED
Patients could sweat normally through up to 22 months of follow-up.
From the Journals
Colchicine looks promising for treating prurigo pigmentosa in case report
Colchicine is thought to act through an anti-inflammatory effect by inhibiting neutrophil chemotaxis.