Rare Diseases
Article
National Health Council to Host Workshop for Patient Organizations
Article
NORD Call for Abstracts Reopened
Article
NORD Submits Comments to the Centers for Medicare and Medicaid Services
News
NORD Advocates for Iowa Co-pay Choice Bill
Article
Letter to Congress: NORD and Others Oppose “Right to Try”
Article
Rare Disease Day Events Planned for Campuses, Hospitals, and State Legislatures
Article
NORD to Moderate Panel at NIH Rare Disease Day Event
From the Journals
Macrophage activation syndrome’s impact in childhood SLE felt mostly early
MAS remains a concern for children with SLE, but many outcomes were not significantly different from those without the complication.
From the Journals
Cases link vitiligoid lichen sclerosus and darker skin
High-potency topical steroids and/or calcineurin inhibitors resolved symptoms in all cases, but depigmentation remained.