AWaRDS Study Examines Services for Adults With Rare Disorders

NORD is partnering with researchers at Oregon State University to conduct the first large-scale study of information and psychosocial support needs of people living with rare disorders. The purpose is to assess the needs and find similarities and differences across the spectrum of disorders. An online survey is now open for adults living with rare diseases. The principal investigator is Kathleen Bogart, PhD, Assistant Professor of Psychology at Oregon State. Co-investigator is Veronica Irvin, PhD, MPH, also of OSU.