News from NORD

Huntington’s Disease Society of America Publishes 2016 Research Report

Publish date: February 3, 2017

 

The Huntington’s Disease Society of America (HDSA) has published a report providing in-depth information on research on Huntington’s disease conducted during 2016. Read the 2016 report as well as ones from previous years here.

Recommended Reading

First visit for tuberous sclerosis complex comes months before diagnosis
MDedge Family Medicine
Lysosomal acid lipase replacement corrects rare genetic cause of liver failure, atherosclerosis
MDedge Family Medicine
PERSIST-2 might allay some concerns about pacritinib in myelofibrosis
MDedge Family Medicine
Adolescents, boys, black children most likely to be hospitalized in SJS and TEN
MDedge Family Medicine
Nominate a Patient or Colleague for a NORD Rare Impact Award
MDedge Family Medicine
Join Others Around the World in Observing Rare Disease Day
MDedge Family Medicine
AWaRDS Study Examines Services for Adults With Rare Disorders
MDedge Family Medicine
NORD Report Shows Majority of States Fall Short on Reducing Burden of Living With a Rare Disease
MDedge Family Medicine
Spinal CSF Leak Foundation Publishes Resources for Medical Professionals and Patients
MDedge Family Medicine
West Nile virus accounted for 95% of domestic arboviral disease in 2015
MDedge Family Medicine