News from NORD

Hyper IgM Foundation Publishes Blog


 

The Hyper IgM Foundation recently published a blog promoting better understanding of Hyper IgM syndrome, a rare, genetic, immunodeficiency disorder. In particular, they are seeking to provide information for patients and families going through stem cell transplantation.

Recommended Reading

Screening MRI misses Sturge-Weber in babies with port-wine stain
MDedge Family Medicine
Preview Agenda for NORD’s 2017 Rare Diseases and Orphan Products
MDedge Family Medicine
FDA Commissioner to Present Keynote Address at NORD Summit
MDedge Family Medicine
Examining the Role of Caregivers at NINR Caregiving Summit
MDedge Family Medicine
FDA Launches Expanded Access Navigator
MDedge Family Medicine
Columbia Neurosurgery Article Highlights Medical Expert’s Support for NORD Patient Information
MDedge Family Medicine
AA MDS Offers Webinar Series
MDedge Family Medicine
NORD Welcomes All Things Kabuki as New Member
MDedge Family Medicine
Alpha-1 Foundation Announces Funding Opportunities
MDedge Family Medicine
cureCADASIL Announces Publication of Study Results
MDedge Family Medicine