News from NORD

Aplastic Anemia and MDS International Foundation (AAMDSIF)

Publish date: May 8, 2018

 

AAMDSIF will be hosting seven “Living with Aplastic Anemia, MDS, PNH” patient and family conferences in cities around the country this year. Each free event offers opportunities to learn from leading medical experts and to connect with other patients and caregivers. More.

Recommended Reading

2018 Marks 35th Anniversary of NORD and the Orphan Drug Act
MDedge Family Medicine
RFPs Available for the Study of Three Rare Diseases
MDedge Family Medicine
More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Family Medicine
Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
MDedge Family Medicine
NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
MDedge Family Medicine
Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
MDedge Family Medicine
NCATS Unveils Toolkit for Patient-Focused Therapy Development
MDedge Family Medicine
NORD Updates Educational Rare Disease Reports
MDedge Family Medicine
Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Family Medicine
American Partnership for Eosinophilic Disorders (APFED)
MDedge Family Medicine