News from NORD

Apply Now to Join NORD’s Charity Marathon Team


 

Running for Rare, NORD’s charity marathon team, will be running the Los Angeles Marathon on March 19 to raise funds for NORD’s patient assistance program for undiagnosed patients and to raise awareness of rare diseases. Each runner is paired with a community partner (a patient or caregiver) who provides inspiration to the runner.

Applications are open for runners and community partners. The LA Marathon is the 5th largest marathon in the US and the 11th largest worldwide. More than 25,000 people participate. Details.

Recommended Reading

PERSIST-2 might allay some concerns about pacritinib in myelofibrosis
MDedge Family Medicine
Adolescents, boys, black children most likely to be hospitalized in SJS and TEN
MDedge Family Medicine
Join Others Around the World in Observing Rare Disease Day
MDedge Family Medicine
AWaRDS Study Examines Services for Adults With Rare Disorders
MDedge Family Medicine
West Nile virus accounted for 95% of domestic arboviral disease in 2015
MDedge Family Medicine
Huntington’s Disease Society of America Publishes 2016 Research Report
MDedge Family Medicine
FDA approves Emflaza for Duchenne muscular dystrophy
MDedge Family Medicine
NORD Seeks Input Regarding Patient Protections and ACA
MDedge Family Medicine
Rare Disease Day 2017 Will Highlight Research Theme
MDedge Family Medicine
NORD to Partner Again With Hole in the Wall Gang Camp
MDedge Family Medicine