News from NORD

Children’s Cardiomyopathy Foundation

Publish date: May 8, 2018

 

The Children’s Cardiomyopathy Foundation offers a research grant program for studies focused on all forms of cardiomyopathy in children. Letters of intent are due June 13, 2018. More.

Recommended Reading

RFPs Available for the Study of Three Rare Diseases
MDedge Family Medicine
More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Family Medicine
Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
MDedge Family Medicine
NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
MDedge Family Medicine
Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
MDedge Family Medicine
NCATS Unveils Toolkit for Patient-Focused Therapy Development
MDedge Family Medicine
NORD Updates Educational Rare Disease Reports
MDedge Family Medicine
Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Family Medicine
American Partnership for Eosinophilic Disorders (APFED)
MDedge Family Medicine
Aplastic Anemia and MDS International Foundation (AAMDSIF)
MDedge Family Medicine