News from NORD

Dup 15q Alliance


 

Join the Dup 15q Alliance and the Angelman Syndrome Research Foundation August 6-7, 2018, for world-class scientific, translational, and clinical presentations. This symposium allows for the sharing of unpublished work, which leads to conceptual discussions and helps to accelerate therapeutic opportunities for both disorders. More.

Recommended Reading

Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
MDedge Family Medicine
NCATS Unveils Toolkit for Patient-Focused Therapy Development
MDedge Family Medicine
NORD Updates Educational Rare Disease Reports
MDedge Family Medicine
Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Family Medicine
American Partnership for Eosinophilic Disorders (APFED)
MDedge Family Medicine
Aplastic Anemia and MDS International Foundation (AAMDSIF)
MDedge Family Medicine
Children’s Cardiomyopathy Foundation
MDedge Family Medicine
Cornelia de Lange Syndrome (CdLS) Foundation
MDedge Family Medicine
CurePSP
MDedge Family Medicine
Cure SMA
MDedge Family Medicine